For Reseachers
The Insight Registry collects disease-specific natural history data about individuals with Ocular Melanoma, with the goal of improving the understanding of Ocular Melanoma and informing treatment development. Registry questionnaires were built from common data element standards and cover the following topics:
- Socio-demographics
- Medical history and diagnostics
- Treatment and disease progression
- Management of care
- Quality of life
- Clinical trial participation
- Mental Health
- Metastatic disease progression
- Access to care related to the COVID-19 pandemic
We are interested in sharing our data with you! If you would like access to the Insight Registry data for a research project, please submit a request here. Access to Insight Registry data is contingent upon project approval by the Registry Name Advisory Board.